Wednesday, November 16, 2016

A New Diagnosis = Renewed Hope

   Thanks to everyone who has been praying for Kiana these past weeks. Yesterday I took her to the doctor and she thinks Kiana may have something called PANDAS, which is an autoimmune disorder. When a person contacts strep, their body produces antibodies to fight against it. Sometimes these antibodies attack the brain which results in neuropsychiatric behaviors. Kiana is being treated with antibiotics at this point. If she truly does have PANDAS she will develop symptoms every time she is in contact with strep, so it isn't a once and done thing. There can be many complications but we are hopeful that the antibiotics will help her this time around and we leave the future in God's hands. 

   I was praying for answers for Kiana while researching ways to help her/what could be causing her symptoms. In a trauma forum someone mentioned PANDAS and on a whim I looked it up. The symptoms people shared sounded so very familiar and we felt like there might be a way made after all. When I took Kiana to the doctor I wasn't sure how to ask the doctor if strep were a possibility (at this point the PANDAS diagnosis is still very controversial) when I explained what we were seeing in Kiana the doctor said, "Did you ever hear of PANDAS?" I felt God smiling down and reassuring me, "I have this, just trust me." 

   Tomorrow is Joseph's appointment at Geisinger. I was told to expect the appointment to last several hours so today I am taking it easy in preparation. I also spent sometime organizing his file. I have a plastic binder for each of our children and I store their test results, doctor visit reports as well as the papers from their neuropsych evaluations in them so I have everything at my finger tips when I go to these appointments. I have included doctor and pharmacy phone numbers as well as addresses. Keeping things organized is the only way I can keep track of everything. 



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